Please join me in raising funds to help a lovely girl and her family.
Here is a little look at my project which went LIVE Today
Lara has Cerebral Palsy and also has Microcephaly, Epilepsy and a Vision Impairment. Her parents get up every night to physically move her so she does not get bed sores. They are in need of a self inflatable mattress. This mattress inflates and deflates so it moves her during the night.
We Stamp For Lara is 15 stamping tutorials over 15 days fro Stampin' Up! Demonstrator's (including ME!) for $15
Payment made by Direct Deposit or PayPal. Contact me via a pm for transfer details. Once done and we will add you to the FB group where you will be able to access the tutorials.
We Truely Appreciate your Help if you have Stampin Friends please feel free to share this post
Here is Lara's Story -
Lara was born on the 5th of November 2008. The fourth child of Mark and Madonna. She was different to her siblings. She looked different…she had twisted feet….she didn’t cry like the other babies. She didn’t move like them either. However, after a week in the nicu we were released to go home, with a paediatrician’s words ringing in our heads “She may or may not be normal, depending of if she does or does not reach developmental milestones.” She was given a diagnosis of Cerebral palsy at 5 months during a hospital stint to correct a floppy voicebox. During that stay she was also put on naso-gastric feeding (a tube down the nose and into her tummy). By one she had started having seizures and had a number of other “foibles”.
Over the last seven and a bit years Lara has had many hospital stays with a number of illnesses. She has been diagnosed as having a “life-limited” condition. We do not know what that means. We do know that she is unable to talk or walk. She cannot communicate via traditional words or even gestures as her ability to control her limbs is very limited. What she does do is convey her love through her eyes. She verbalises some sounds and is very quick to moan and whinge if she wants to be moved or has a full nappy!
Lara has a plethora of drugs each day to keep her seizure activity stable. This is mostly successful but a simple cold can be enough to put us in hospital for a little visit due to her compromised immunity and poor lung function. She needs to be moved into different positions to help her manage her secretions and to prevent pressure areas.
One of the items we are looking at fundraising for over the next few months is a better pressure mattress for Lara’s bed. She has a hospital bed that we are able to manoeuvre into various positions for her (tilt, height etc) but the mattress is very simple and we use an egg shell topper at the moment to assist in the pressure management. We (actually, Mark..mostly) move her from side to side during the night to alleviate the risk of pressure areas. An appropriate mattress can help with those risks.
We are so grateful to all of you for always being willing to put your hands up to help us to Help Lara. She is a delight and a blessing. If you have ever gazed into the depths of her gorgeous blue eyes you would understand she is a special little person in more ways than just her diagnoses.
Lara was born on the 5th of November 2008. The fourth child of Mark and Madonna. She was different to her siblings. She looked different…she had twisted feet….she didn’t cry like the other babies. She didn’t move like them either. However, after a week in the nicu we were released to go home, with a paediatrician’s words ringing in our heads “She may or may not be normal, depending of if she does or does not reach developmental milestones.” She was given a diagnosis of Cerebral palsy at 5 months during a hospital stint to correct a floppy voicebox. During that stay she was also put on naso-gastric feeding (a tube down the nose and into her tummy). By one she had started having seizures and had a number of other “foibles”.
Over the last seven and a bit years Lara has had many hospital stays with a number of illnesses. She has been diagnosed as having a “life-limited” condition. We do not know what that means. We do know that she is unable to talk or walk. She cannot communicate via traditional words or even gestures as her ability to control her limbs is very limited. What she does do is convey her love through her eyes. She verbalises some sounds and is very quick to moan and whinge if she wants to be moved or has a full nappy!
Lara has a plethora of drugs each day to keep her seizure activity stable. This is mostly successful but a simple cold can be enough to put us in hospital for a little visit due to her compromised immunity and poor lung function. She needs to be moved into different positions to help her manage her secretions and to prevent pressure areas.
One of the items we are looking at fundraising for over the next few months is a better pressure mattress for Lara’s bed. She has a hospital bed that we are able to manoeuvre into various positions for her (tilt, height etc) but the mattress is very simple and we use an egg shell topper at the moment to assist in the pressure management. We (actually, Mark..mostly) move her from side to side during the night to alleviate the risk of pressure areas. An appropriate mattress can help with those risks.
We are so grateful to all of you for always being willing to put your hands up to help us to Help Lara. She is a delight and a blessing. If you have ever gazed into the depths of her gorgeous blue eyes you would understand she is a special little person in more ways than just her diagnoses.
Thanks for you support
Ellen
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